Designing Spaces of Hope with Mark Ostrom

May 20, 2024

Shortly after publication, a transcript of this episode will be published on SpecialEd.fm

Host: Dana Jonson

Guest: Mark Ostrom, Founder of Joy Collaborative

Introduction:
In this episode of "Special Ed on Special Ed," host Dana Jonson welcomes Mark Ostrom, the founder of Joy Collaborative, to discuss how his organization uses compassionate design to create life-changing spaces for youth with life-limiting conditions. Discover the power of design in transforming the daily experiences of these young individuals and their families.

Memorable Quotes:

1. "You showed us how to live in our space." - Feedback from a family helped by Joy Collaborative.
2. "We fill the gap between a make a wish and a Habitat for Humanity, creating lasting environments." - Mark Ostrom.
3. "We gotta stay high... we're only here for a short period of time, we're going to leave you something that you're going to be living with for a long time." - Mark Ostrom, discussing the commitment to high-quality solutions.

Discussion Highlights:

• Mark's Background and the Founding of Joy Collaborative:

  • From organizing neighborhood kids to leveraging a career in architecture for social good, Mark shares his journey to founding Joy Collaborative.
  • The impact of his experiences at the University of Minnesota's cleft palate clinic and his architectural projects on his approach to helping families.

• The Impact of Joy Rooms:

  • Detailed discussion on how Joy Rooms are designed with the needs of children and families in mind, focusing on functional, joyous spaces.
  • Real-life project examples, including the transformation of Hans’s living space into a multifunctional area conducive to medical care, family activities, and personal comfort.

• Community and Support:

  • The role of partnerships with architects, builders, interior designers, and contractors.
  • How these collaborations facilitate the creation of specialized environments tailored to the unique needs of their beneficiaries.

• Broader Applications and Future Projects:

  • Introduction of the "Joy Mobile," a traveling multi-sensory environment designed to reach schools, clinics, and community events, offering adaptable and therapeutic spaces.
  • Discussion on future research collaboration with the University of Minnesota Nursing School to evaluate the benefits of Joy Collaborative’s work.

Resources Mentioned:

• Joy Collaborative Website - Explore more about the organization, their projects, and ways to get involved.
• Crescent Cove - Palliative care provider for young children, collaborator with Joy Collaborative.
• Firefighters for Healing - Partner organization providing transitional housing connected to health services.
• University of Minnesota School of Nursing - Upcoming research partners focusing on the impact of designed spaces on health outcomes.

Call to Action:
Engage with Joy Collaborative by visiting their website to learn more about their mission, view project galleries, and find out how to contribute through donations or volunteering. Your support can help extend the reach of their transformative projects to more children and families in need.

Note to Listeners:
This episode provides a deep dive into how thoughtful design can significantly improve the quality of life for children with severe health challenges. Join us in spreading the word about Joy Collaborative's mission to transform spaces into sources of comfort and joy.